Paul V. Sherlock Center on Disabilities

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Health Resources

General Resources

Transition to Adulthood: A Health Care Guide for Youth and Families, published by the Autistic Self Advocacy Network provides people with disabilities and their families with information on how to choose a source of health care coverage, create a health care support network, integrate health care transition goals into their educational plans, and manage their health care. It includes useful guides and worksheets for keeping track of health care records, making doctor's appointments, and talking to doctors about health concerns.

Rhode Island Resources

The Sherlock Center wishes to highlight the following resources available from the State of Rhode Island Department of Health for individuals and families. If you have difficulties accessing any of the resources or need to know the size of a document before downloading, please contact Deb Golding.

Rhode Island Special Needs Emergency Registry
The Rhode Island Department of Health (HEALTH) and the Rhode Island Emergency Management Agency (RIEMA) have joined together to develop a registry for Rhode Islanders with disabilities, chronic conditions, and other special healthcare needs. This system is designed to identify individuals who require special assistance during emergencies. Enrollment in the Registry does not guarantee assistance, but allows first responders to appropriately plan for, prepare for, and respond to the needs of the community. Learn more.

Living Wills and Power of Attorney
Rhode Islanders have the right to control decisions related to their medical care and to authorize others to make medical decisions for them if they become unable to do so themselves. Living Wills and Power of Attorney are tools that may help with decision making. Learn more and access forms.

Portable Medical Summary (WORD)
The Portable Medical Summary is a useful tool for individuals and families to record medical information in one spot. It is designed for people to carry on their person and provide to caregivers, emergency room personnel, specialist, or when transitioning from pediatric to adult providers.

My Life, My Health Checklists
The Department of Health created a series of health planning tools for individuals and families as they plan their healthcare transition. "Ready, Get Set, Go!" guides are available in English and Spanish.
For print copies, contact Deb Golding, Adolescent Healthcare Transition Coordinator at the Department of Health.

Full Size Version Print Version Print Version (Spanish) Simplified Text w/Symbols
Ready? (PDF) Ready? 2.4 MB (PDF) Ready? 2.9 MB (PDF) Ready? 465 kb (PDF)
Get Set (PDF) Get Set 2.5 MB (PDF) Get Set 2.8 MB (PDF) Get Set 477 kb (PDF)
Go! (PDF) Go! 2.5 MB (PDF) Go! 2.9 MB (PDF) Go! 539 kb (PDF)

Rhode Island Resource Guide for Families of Children who are Deaf or Hard of Hearing
This guide provides families with current information and resources about health and educational options for children from birth through age 21 who have hearing loss.

Resource Guide for Families of Children with Autism Spectrum Disorders
This guide provides information for families at different stages of the ASD diagnosis process, to assist them in finding help for their children and family support.

Information detailed in this guide includes: English (2011) (PDF)
Espaņol (2006) (PDF)

RI Health Care Survey - Adolescent Health Care Transition in RI

There has been a growing recognition that Health Care Transition (HCT) is a critical aspect of successful entry to adulthood. HCT supports economic self-sufficiency, independence and prevents school dropout and delinquency. As a result, there is an increasing interest in services and supports for young people with disabilities and chronic health conditions that address all aspects of health and well-being, including promoting health, preventing secondary conditions, and preparing for entry into adult systems of care.

In order to complete the picture of knowledge of and attitudes toward HCT, to understand the barriers to addressing HCT, to assess the HCT information and training and to set the direction of HCT work, the Transition Council invites the following groups to complete this survey: Parents, Students, Teachers, School Nurse-Teachers, Special Education Directors, Transition and Care Coordinators (@RIDE, ORS, DCYF, DHS, BHDDH), and other education and health care stakeholders.

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